Today started with some good news. Emily was weaned off oxygen. She had some low oxygen levels overnight even with the oxygen on but today her numbers have been in the high 90's most of the day while breathing room air.
We also were able to get Emily up into a
wheelchair yesterday and today. She doesn't like the process of getting
into or out of the chair, but she was pretty happy
while in the chair. She was able to sit up for about 2 hours. We also
went for some short walks through the halls. It was good for both of us
to get a change of scenery. Amazing what that can do for our morale!
Yesterday, Emily was on IV fluids all day,
then we started her regular feeds overnight via the pump. We did her 9am
bolus feed and then her heart rate went crazy and she was not happy. An
x-ray was taken and we found out that Emily has a lot of gas in her
belly. That is causing her heart rate to race, her oxygen to drop
(although that was better today) and lots of discomfort. We had to stop
her feeds again and put her back on IV fluids to give her digestive
system a rest.
She needs to pass the gas and have a bowel movement. If
she is not able to do it on her own, she will be given some IV meds
tomorrow and if that does not work we will have to take some more
drastic measures to solve the problem. So we will be here for a few more
days, for sure. She did have a tiny BM today and has been able to push
out quite a bit of gas, so we are hopeful that she will be able to
resolve this on her own. We are also continuing to work on some
breathing exercises and suctioning out some of the gunk in her chest.
Please pray for the following:
~ That she will be able to "vent" the gas on her own and have a good BM soon.
~ That her breathing would continue to improve as we do her breathing
exercises and as we get her up in her wheelchair each day.
her pain would be well controlled as we tweak her med schedule (the meds
are slowing down her system and not helping the tummy problems so we
are trying to space them out more).
Thanks for the continued prayers!