Since the appointment was at 1:30,we got Emily up at her regular time: 8-8:30 and then kept her up (she normally gets a morning nap at about 10 and she really likes that nap). She was a bit whiny all morning and probably could not figure out why we wouldn't put her to bed. Mike said Emily was exhausted before and after the test, but she was WIDE awake through the whole thing. The tech puts a bunch of goop in her hair and sticks leads on them so she can do the test. I can only imagine how hard that was with all of Emily's hair! Mike said she was hooked up for about 30 minutes and the tech told him she was all set - she got what she needed. He thought it seemed odd that she was done and Emily never went to sleep. Guess we will find out if they got enough information when we go to the neurologist's office.
Speaking of that appointment, I got a call Tuesday afternoon to confirm our Friday appointment. Then on Wednesday afternoon they called back to tell us that they had to cancel that appointment and asked if we could come in on Monday. I was hoping that we would instead be meeting with a doctor, but no, we are still meeting with the nurse practitioner. I even called back today to see if they had any cancellations, but no luck. I am really loving this neurologist's office!
One more thing about the EEG. The tech told Mike that we could use dish soap to get the goop out. That afternoon, Emily looked like she stuck her finger in a light socket. Her hair was puffy and stiff. I wish I thought to take a picture, but I didn't (she will probably thank me for that when she is a teenager). I had such a fun time giving Emily a bath on Tuesday night. I think it was the longest bath ever. I did use some dish soap on the really bad spots. It did work pretty well, but still took a while to get all the goop out. After the bath, it took a long time to comb through her hair to make sure I got everything. Her hair was so dry too, so that made the combing so much fun. Emily had a good cry by the time we were done. Good times, I tell ya! She has a little bit of hair, ya know:
Emily is doing a little better on Depakote, but we are not thrilled with this medication. She is less lethargic than she was in the beginning, but she is still pretty irritable. On Sunday night, we went to our LIFE Group (on Sunday nights, our church does small group meetings in homes). She was fine through the whole meeting, but started to get a little fussy toward the end. I fed her and entertained her and she seemed OK, until we got in the car. She cried the whole way home (about a 5-10 minute ride) and then calmed for a little while when we got home, only to gear up again. She ended up having an hour long crying fit. We think this medication is really upsetting her stomach. We definitely would like to switch her to a different medication. My concern is - how do we know which one? Do we turn our child into a guinea pig trying all different drugs to see what works? Definitely something to discuss with neurology when we finally get to see them. *sigh*
Emily has also been teething lately. She is working on her canines. The top two have started to break through the skin - you can see and feel the points. Now, she is working on the bottom two. She started out getting her two bottom teeth at the same time, then the top two, then 4 molars at once and now these 4. She doesn't mess around! There are months and months in between, but when she gets teeth, she believes in working on a few at a time.
Emily met with the nutritionist today so we have the latest figures. All I can say is, there is a very good reason why we call her Weed!
Weight: 28 lbs. 10 oz.
Height: 36 1/2 inches
She gained 12 ounces this month and grew half an inch! I keep thinking the growth will taper off at some point, but I am really starting to think she will be 6 feet tall when she is 5.