Thursday, January 15, 2009

Two weeks into 2009

The past two weeks have been very busy with doctor appointments and meetings. We had our six month evaluation with First Steps (all the therapists and the coordinator) to discuss our goals for the next six months. We are going to put more focus on speech therapy for communication and less focus on physical therapy. We will also be adding an occupational therapist to focus on fine motor skills.

We visited with the Orthopedic doctor on Monday who said that Emily is doing great. She had only good news for her and is excited about the capabilities that she sees in her. She increased the dose of her Baclofen (which is to relax her muscles) and gave her a prescription for a new set of orthopedic footwear.

We saw her neurologist yesterday and he was optimistic also. We need to keep things in perspective. I am not saying that they think she is going to be fully functional, they just see improvements in her movements and her attention. She was following an object with her eyes for the neurologist and paying attention to him when he was speaking to her. These are good signs!

Emily is still having problems with congestion. We put her on Amoxicillion for a week and it seemed to make things worse. She is now done with the medication and she is where she was before she started taking it. She has been sleeping through the night and eating more food than she was previously, so we are going to leave well enough alone.

We have not been very camera happy the last few weeks. I don't think we have taken any pictures of Emily this year...at least I haven't. As soon as we do, we'll post them.

Someone sent me a pretty funny photo that I think is appropriately named Red Neck Seafood Dinner. Everything on this plate is a typical food that you would have at any gathering here in KY. If you are reading this from RI, it is going to look a little strange, but any Southerner will understand.



"Red Neck Seafood Dinner"

3 comments:

Stephanie's Mommy Brain said...

That is just gross!

And not typical at all. I mean, where's the bacon fat dripping off the green beans?! And those hot dogs ought to be cut up and mixed in the macaroni and cheese.

Ugh! How did I ever eat like that?!

Michael Christy Marion said...

Emily,
I am so glad that your parents have become professional southerners. When we first met them, they thought we were quite odd with out southern ways, but now, here they are, joining in on the fun.
Would you ask your parents what size you wear? We have lots of clothes around here and I would love to send some your way if they would work.
Last, your pictures are just precious. I am so excited to read of your growth, your progress, and the great reports from all of your physicians. Blessings to you, little girl, for a happy and healthy 2009.
The Norton Family

Anonymous said...

DEAR MIKE, DAWN AND EMILY ROSE,

JUST WANTED TO TOUCH BASE WITH YOU AND LET YOU KNOW I HAVEN'T FORGOTTEN YOU. YOU ARE ALL IN MY THOUGHTS AND PRAYERS ALWAYS. I DO SO MISS YOU.

HOPE ALL IS WELL WITH YOU. I KNOW YOU ARE GETTING READY FOR YOUR TRIP, MIKE. PLEASE KNOW THAT I WILL BE PRAYING FOR YOU EVERY DAY AND NIGHT -- AND FOR YOU TOO DAWN. I KNOW ALL WILL BE WELL AS GOD WATCHES OVER HIS OWN. HAVE FUN AND BE CAREFUL AND HOPEFULLY THE TRIP WILL BE A BIG SUCCESS!

LOVE AND MISS YOU ALL.
GOD BLESS YOU AND KEEP YOU.

MOM