Today Emily went to another doctor for a check-up. This is her second doctor's appointment this week. We went to the stomach (GI) doctor on Tuesday and she gave us some different medications to try to see if Emily will react better to her feedings. It is too early to tell the results, but she is becoming more dependant on drugs than we would have liked. She is taking her seizure medication, a medication for her spasticity (which seems to be working well), now a medication for reflux, to control her stomach acid, and a stool softener.
It may seem like a lot, and to us it is, but the doctors said that most children with Cerebral Palsy will have digestion problems. This is something that she will have to live with; at least for now.
The doctor we went to today was the Neonatal Follow-up which was the original doctors who referred Emily to the First Steps program. Because we see so many different doctors for specific issues I had to ask them why I need to see them. She replied that I really didn’t have to see them anymore, but we would schedule the appointment for her 18 month birthday. We can always cancel it if we don’t have any issues. It was good to go today because with all that has been going on with Emily in the last few weeks, I wanted to make sure that we cover all our basis and have her looked at by several doctors to assure us that we are doing all that we can.
We are going to monitor her eating for the next few weeks and see if there are improvements from the medications she is on before deciding to do anything else. We’ll keep you informed; just keep checking back for updates…